Where to begin? ~
I apologize for my lack of blogging lately. Life has been a little busy!
My original plan was to wait and write an update post Care Conference. Unfortunately the meeting did not go as hoped nor planned. It seemed that instead of taking a leap forward, I took a few steps backwards. In one way, this meeting gave me some new directions and guided me to take a different path. With time, I'm hoping that things will get back on track, with my specialists all being on the same page and having the same goal in mind, helping to improve me, my symptoms and illnesses.
Following the Care Conference, my best friend, came out and visited for a week. Time that was so desperately needed and appreciated! She lives out of state and so we aren't able to get together as much as we would like, but as we like to say, all the time we spend apart makes the time that we do get to spend together, that more special.
June 6th was the American Lung Association's Lung Force Walk. It was an amazing turn out for both Team Respiration for Kaitlyn and the entire walk as a whole. For my team, we were able to raise $1,500 for better research to find cures for all lung diseases. I want to thank every single person that took any part of this, whether you raised money, donated, walked, or were supporting me in spirit/prayer, I thank you from the bottom of my heart!
The day following the Lung Force Walk, my parents and I left for South Carolina! It was sort of a spontaneous trip, which I think tend to be the best! So we spent a little less than a week at the beach, a.k.a, my second home. It was so amazing to be able to take some time and spend it with my parents, watching them relax and enjoy themselves. They spend majority of their time in uncomfortable couches & chairs in the hospital, or being so anxious for the next symptom, the next illness, surgery, admission, etc... I enjoy when we get to put that on the back-burner, even if it is just for a few days.
Health-wise, my body is trying to be a little more stubborn than usual. In the last 4 months I have been trying to fight off deep ear infections (which have made my ear canals and the skin in my ears completely raw, making it nearly impossible to wear my hearing aids), cysts that are filled with not one, but both Staph and MRSA infections, strep throat, sinus infections, skin infections, possible mononucleosis (Mono), significant decrease in lung function, separate viruses (different from all the other viruses and infections happening at the same time), and we are still trying to figure out if there is a chest/lung infection and the reason for such a drop in my lung function, and other things popping up in my blood work and tests. I'm doing my best trying to manage all of these things on top of all of my scheduled appointments, not mentioning the emergency clinic visits/scans/tests. I have an out-of-town appointment that I have been anxiously awaiting for a while now, next Wednesday!
I will try not to let as much time pass before my next post!