I've been pretty sick since I last updated. (which explains the lack of posts) Since arriving back home from my trip to PA, I have felt nothing short of terrible. My lungs have been declining, my muscles are weak, and at times, my pain is through the roof. I have been back and forth from the hospital and home and nothing really seems to be helping, and when it does help, it lasts a very short time. I did find out about my Care Conference which will be taking place on November 20th. At that time, multiple of my specialists, my parents, and I, together, will talk about what my next options are as far as treatment and where to go from here. We seem to be running out of options and I'm not too happy about the way my health has been going, and especially what's being done about it.
On the other hand, school has been frustrating and disappointing in itself. Of course, I have missed quite a bit of school in the past several weeks and unfortunately have had to drop one class, and now will not pass another. I'm forced to reconsider my schooling and put my education aside at times to regain better control of my health. I hear from many people that "Your health comes first, you can always go back to school down the road." I agree completely, when trying to decide which priorities need to come first, between my education and my health, there is no option. My health must come first. Even still, it's upsetting.
There comes a point where it all becomes too much. When we get too tired to fight anymore. So we give up. That's when the real work begins. To find hope where there seems to be absolutely none at all.